Advocacy in rare disease: Surveying the landscape - Science
Durhane Wong-Rieger is a Chinese-born, American-raised, [1] Canadian with a Ph.D. in psychology. She is best known for her role as an advocate of patients who contracted diseases such as HIV and hepatitis C from tainted blood transfusions, in particular from the Health Management Associates scandal. [2]. Durhane Wong-Rieger - Wikipedia
Durhane has a PhD in psychology from McGill University and was a professor at the University of Windsor, Canada. She is a trainer and frequent lecturer and author of three books and many articles. Durhane Wong-Rieger: championing patients - PubMed
Tapped as the first senior vice president of government relations for the Christopher & Dana Reeve Foundation, he played an integral role in establishing the foundation as a leading force for advancing medical research and improving quality of life for the mobility impaired. Durhane Wong-Rieger, Ph.D. - Science | AAAS
CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. * Please note that CORD does not provide any clinical services and staff are not able to assist in making a diagnosis or referrals. Durhane Wong - Manning Foundation for Democratic Education
DURHANE WONG-RIEGER, PHD is Chair of Rare Disease International, Vice-Chair of Asia Pacific Rare Disease International, member of the Editorial board of the Patient-Patient Centred Outcomes Research, member of the global commission to End the Diagnosis Odyssey for Rare Diseases and member of Health Technology Assessment International Patient. Canadian Organization for Rare Disorders - Wikipedia
Durhane Wong-Rieger Durhane is the President and Chief Executive Officer of the Canadian Organization for Rare Disorder (CORD). As an outspoken patient advocate, Durhane made a significant contribution to the haemophilia community following the contaminated blood scandal exposed in the early 90’s.
Durhane Wong-Rieger -
DURHANE WONG-RIEGER, Ph.D. is Chair of Rare Diseases International, President of Asia Pacific Alliance of Rare Disease Organizations, Treasurer of UN NGO for Rare Diseases, Chair of Patient Advocates Constituency Committee of the International Rare Disease Research Consortium, member of the Editorial Board of The Patient- Patient Centered.
CORD provides a strong common voice to advocate for health policy and a healthcare system that works for those with rare disorders. * Please note that CORD does not provide any clinical services and staff are not able to assist in making a diagnosis or referrals.
The document outlines Canada's Rare Disease Strategy, which aims to improve the lives of those affected by rare diseases through 5 key. DURHANE WONG-RIEGER, PHD is Chair of Rare Disease International, Vice-Chair of Asia Pacific Rare Disease International, member of the Editorial board of the Patient-Patient Centred Outcomes Research, member of the global commission to End the Diagnosis Odyssey for Rare Diseases and member of Health Technology Assessment International Patient.
Durhane Wong-Rieger - Chair - International Alliance of ...
Biography Durhane Wong-Rieger President CEO, Canadian Organization for Rare Disorders; Chair, Consumer Advocare Network; President & CEO, Institute for Optimizing Health Outcomes; Chair, Canadian Heart Patient Alliance.